Our Goal
Our Steering Council is a group of persons living with dementia, family caregivers, community health workers, community organizations, and researchers from across the San Antonio and South Texas region who are working together for this project. Our goal is to mobilize our South Texas Latino community to participate in and lead patient-centered dementia care research.
To do this, we have been building our skills as a Council in community engagement and research so that we can connect with our wider communities to become involved in our efforts. We have been hosting pláticas (community conversations) with Latino families impacted by dementia and other key community members to discuss our experiences with dementia and how research can address the issues that matter to us.
We are developing resources to support researchers and Latino community members to work together for patient-centered research in dementia care. These resources include prioritized lists of research topics and outcomes, a report/guide on hosting community pláticas for research, and a series of videos reflecting testimonios (personal narratives) of the families and community members impacted by dementia.
